Chapter 33

Dear Readers,

Sorry this is published later than I wanted it to be... my body crashed after birthday celebrations and so I've been laid up in bed, resting and recouping! 

On Monday 13th I was blessed to turn another year older. This year marked 15 years since my PH diagnosis and not knowing if I would make it to 18 years older, but I am stable and still here making the most of every single day!


Terry and I celebrated at the weekend with a trip to London. We went to the Japanese restaurant, Inamo, in Soho and attended a sushi masterclass. We both love sushi, so being taught how to make it properly was a great activity for us to do together.

We were shown how make two types of sushi - first we made Futomaki, followed by a dragon sushi roll. 


Futomaki is a type of Japanese sushi that is rolled into a long thick cylinder. A literal translation of futomaki is "fat rolled sushi." It is rice and fillings wrapped in dried, roasted seaweed (nori), and then sliced into smaller bite-sized pieces. 

Dragon sushi roll - This is the festive dragon roll. It is a tasty uramaki sushi roll featuring shrimp tempura. Made to look like a dragon, this inside-out sushi roll is filled with rice and shrimp tempura with slices of avocado designed to look like the scales of the dragon.


The masterclass was fantastic - we had such a good time and our teacher was great. Afterwards it was followed by an all you can eat and drink buffet. We definitely made the most of it and stuffed ourselves with food. We were rolling out of the restaurant... Haha!

We then headed back to our car in Westfields and did a bit of shopping. We both had a wonderful time and fortunately the sun was shining that day.

On my actual birthday, I had a lovely day. I went for lunch with my mum, followed by some more shopping. When Terry got home from work he cooked us steak and chips and for dessert, we had slices of the Ferrero Rocher chocolate cake which he had made for me - it was delicious!


Thank you to my wonderful husband Terry and lovely mum for a fabulous birthday. I also want to thank all those who sent cards, birthday messages and posted on my social media. I appreciated all of them, so thank you very much. Like I said in my birthday message, life is a gift, grab it with both hands and live it to the best of your abilities. It won't always be easy, but it'll be worth it.

Meanwhile, my health isn't that great at the moment, I'm suffering from severe breathlessness and relying on my oxygen more frequently. I guess this cold weather will always affect the weaker parts of my body, and that goes for many of my friends with PH and other chronic illnesses. I've already been on 3 courses of antibiotics, so hopefully I can get myself through Winter without anymore! fingers crossed! My Music Therapy business is growing well and I really enjoy doing something I love. Yes, I only work an hour here and there, but being my own boss and working around my health needs is a priority, so being able to choose my own hours allows me to do so.

Next stop... Christmas!

Thank you for reading!