Thursday, 16 August 2018


Hello Readers,

It's been a bit of a difficult time both healthwise and in the PH world, but there's also been good times!

My legs have been on one lately and I've been struggling with the pain. Goodness it's been unbearable and I've been hobbling due to not being able to put pressure on my legs. I've got 2 weeks until I will try a new med that will hopefully tackle this problem. I've got a lot of hopes for this, so keeping everything crossed it will work! I will trial any drug that will help me and hopefully other PH'ers in my situation!

On Monday we were told that we had lost one of our PHriends. Rebecca was 28 and a lovely, lovely girl. Even though we met a few months ago, we instantly clicked and we chatted nearly every day. Sadly she became very poorly and gained her wings. I will miss talking to her, but her hope, strength and love for life will be remembered by all that knew her. In Rebecca's memory, her family are raising money for the PHA UK, please click here to donate. 

It never gets easier when we lose someone in our PH community, no matter what age they were, it will always rock all of us. However we have our community where we will support each other in this sad time. 💜

Despite my pain, I was determined that I was going to have a great weekend with my Twinnie. It had been booked for such a long time and nothing was going to stop me enjoying myself! 

Terry and I had a great time when Tina and Kev came down to Essex. I can't believe it was a year ago, we went to their hometown. Time flies!! We really enjoyed ourselves and we made lots of lovely memories. On the Saturday, the men went off to play golf together and Tina and I had a good ol' catch up and she met my Mum. 

Now, Tina was with us a year ago when we met our Izzy, so that was the last time they had both seen her - Yes, as an 8 week old puppy!! It was great for them to see Izzy all grown up now and she loved seeing them both and reallllllly loved her new hamburger toy!! 

The following day, we all went to play more golf... this time crazy golf! A very golf-orientated weekend!!!! 🏌 It was a great laugh and we played couple vs couple. Sadly Terry and I lost, haha, but I was the only one who got a hole-in-one!! (had to get that in, didn't I?! 😂😂) 

Overall a super weekend with Tina and Kev and we can't wait to see them again! The next time probably at the PHA UK conference. 

Our weekend together shows that despite having Pulmonary Hypertension and the negativity that comes with it, we will meet people who will become friends for life. These friendships are very special as having someone there to talk to, who does understand PH and knows what you're going through, is a comforting feeling. I am very thankful for my friendship with Tina. Her support and friendship has been invaluable and I know she will always be there for me, as I am for her. 

Together, the PH community will continue to raise awareness for this condition and continue to live life to the full!

"PH lives with us, not the other way round"



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